💜 Autoimmune Warriors 💜 You know this low point... The one where you have to choose your cutest pair of pajama pants to wear out in public, when all you want is to go back to bed. That's been my last 24 hours. After an extremely exhausting meeting yesterday over our insurance situation, my body crashed...and crashed hard. I haven't had an autoimmune flare hit that hard in a long time. I had to transport a horse to the vet yesterday evening and if it weren't for the panic of the situation (horse is fine now), I wouldn't have had the energy to load her up and drive over there. I spent the evening fighting low blood pressure, spasms, pain, and freezing to death with the house set to 75.
I found out two weeks ago that my blood is both too thick and there's too much of it. They also did an extended tick panel, and I tested positive for Tularemia. My body couldn't handle the first round of antibiotics, so we are trying to figure out how to get rid of it. I laughed out loud, because I've always joked and said I had some form of human epm... We did a therapeutic phlebotomy and I felt the best if felt in years for about a week and half... Then I crashed.
So when I woke up this morning feeling the same and having seriously low blood pressure, Pat made a call to Dr. Noel Williams and by some miracle he had cancellations and could see me today. (If you've ever tried to get an appointment with him, you will understand the rarity of this.) So he runs through 5 years of my file with him (his PA is who tested for the Tularemia), and comes to the conclusion that he thinks the Tularemia has been possibly the entire 6 years I've had Autoimmune issues. It could be the underlying cause of my total body inflammation that I can't get rid of. I've never seen continued improvement through diet, supplements, medication, ECT... Sometimes things help for a bit, but then my body learns to override the change and I'm back to square one. There's a war going on inside my body and I'm just along for the ride. My body is attacking and breaking down itself.
So we made a plan... I'm going to do a form of stem cell therapy that uses Exosomes. Exosomes alter inflammation, contribute to tissue and organ repair, support neural communication, enhance mitochondrial viability, and transform cells. I'll be honest, I'm still trying to Google and learn more too. I also intend to buy an ozone machine to do ozone therapy. I've always wanted to know how horses feel after stem cell treatments, and now I'll know. I'm that kind of therapist... I want to know how treatments work and how they feel. The medical vets and doctors I work with don't just think outside of the box... They destroy the box. These are the people that have taught me to be the therapist I am.
This is why I've pledged my life to helping people navigate the medical field for themselves and their horses.... I know what it's like to be hopeless... I know what it feels like to be comeback story.... I know what rock bottom feels like too... But my story isn't over.
So here is my message to you... Keep hunting for that cure. Keep hunting for those answers. Medicine is always changing and improving. 5 years ago this was not an option for me, but now it is. If you've never read my origin story, you can find it here: https://summernicoleterry.tumblr.com/post/138770886104/facing-the-journey-ahead (I've now had 18 surgeries since 2013)
I don't share my story for pity, I share my story to give others hope... And to tell you that I'm here when you have questions or need comfort. I've been blessed to help others through my abilities and I have no intention of stopping that any time soon. You only get one body in this lifetime... You have to take care of it!